My 18 year old son has just been diagnosed with Minimal Change Disease. When can I expect to see swelling to start going down? How do I know steroids and Ladin are working? How can I increase his albumin levels? Will he be on cholesterol meds from now on even if he has began a low sodium diet? Is there anything I can use at home to monitor his kidney functions, some type of urine strip or something? Should he be walking? How much fluids should he have per day? How much urine output should he have per day? Does lemons in water help or hurt in any way with treatment? Should he also be on ACE-inhibitors along with steroids, oasis, blood thinners, and cholesterol medication? Is there a support group for Dallas area for MCD? What nephrologists in Dallas area have treated MCD the most with significant experience and having a good outcome for patients? I would like as much information about the disease as possible. My son does not see his nephrologist for two weeks. Any insight you can provide regarding this disease would be greatly appreciative.

The questions that you ask are excellent questions and must be asked of the nephrologist who is caring for your son.  Minimal change disease (MCD) is a common cause of nephrotic syndrome in young people and often responds within 6 to 8 weeks of steroid therapy.  We have a discussion on our web site about MCD at:  https://www.kidney.org/atoz/content/minimal-change-disease

There is also information on the National Library of Medicine web site at:  https://www.nlm.nih.gov/medlineplus/ency/article/000496.htm

I suggest that you take a list of your questions to your nephrologist and get answers from someone who has examined your son and can give informed answers.

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