I had three kidneys and two had normal ureters, while the third kidney which was small, had a ureter that bypassed my bladder and urine from that kidney came out uncontrolled and constantly somewhere along side my urethra. This produced a constant rash from the urine, a severe diaper rash, which lasted until I was nearly ten, and finally a doctor did thorough tests (this was in about 1957) and discovered that my rash was caused by a third kidney. Just before my tenth birthday I had the third kidney removed and was dry for the first time in my life; the rash healed. No further physical problems I’m glad to say, but I had emotional pain from the shame and bad body feelings around the rash and wetness for my childhood years and then have had depression as an adult. Questions: How rare is this? I would like to speak to someone who has had the same condition. Does my kidney condition have a name other than supernumerary kidney? Thank you.

The problem that you describe is a urological problem.  I have never seen this, but I am a nephrologist and do not see urinary tract abnormalities.  I am not aware of any support groups about this particular congenital abnormality.  These diseases are commonly grouped together as Congenital Abnormalities of the Kidney and Urinary Tract (CAKUT).

 

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