I am not familiar with the genetic disorder known as HNF-Beta 1. I have not previously recognized anyone with this disease. I am not aware of anyone studying this disease. I also do not recommend dipstick evaluation of proteinuria. It is better to quantitate the protein in the urine by doing a protein to creatinine ratio. Most genetic disorders manifest at younger rather than older ages. I recommend further consultation with your nephrologist as to how certain you can be about this diagnosis.
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