How common is complete energy depletion in patients on dialysis? My fiance had both Polycystic kidneys removed Jan 2017. He’s been on dialysis 5 years. About 2 years ago, he started suffering from devastating energy loss. He was very active prior to kidney failure, and even for first two years. We remodeled a house and he was up and working every day. In Jan 2014, he was diagnosed with Bilateral Vestibulopathy, from an allergic reaction to Gentimycin. Since then, his equilibrium is very poor. He stumbles frequently; to the point that many people think he is drunk. His nephrologist has him on prednisone right now, which just makes him sweaty. His energy level is still low. He stays in bed until about 11 -12. He gets up, takes shower, then has to take a nap. He has lunch, then sits in couch, with computer. We cook dinner around 8pm at night. He has to sit to chop things. His only activities are literally showering, going online, food prep, and if he’s lucky, he can go grocery shopping – as long as he can use a cart to keep himself upright. (He won’t use carts for handicapped). He’s 52. I am starting to think that he may be in a depression, in addition to his medical issues. We have no physical activity between us, either. It’s very sad for me to watch him disappear.

I agree with you that this is very unusual.  I would suggest that your fiancé have further evaluation and testing.  Depression is very common in dialysis patients and in patients with chronic medical illness.  Your fiancé should ask his nephrologist about further testing and treatment.  A kidney transplant should be considered in order to improve his situation.

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