I was just diagnosed with “At least moderately advanced IgA with very focal segmental glomerular necrosis.” This was the results from biopsy. I don’t want to die. I’m only 40 and have 2 children and husband. Please what can I do? My nephrologist hasn’t called me back. I’m very scared and need to know what I can do to help myself live. What is the life expectancy of this disease? My gfr is 33 and creatine 1.7… no meds and no high blood pressure and have been loosing weight to get back to normal weight. Low salt diet and eating healthy and exercising. Please help.

Immunoglobulin A (IgA) nephropathy is a very common kidney disease and does not cause death.  It is a disease that causes blood and protein to be spilled into the urine and can progress to end stage kidney disease whereby dialysis and transplantation may be needed.  You can learn more about IgA nephropathy on our web site at:  https://www.kidney.org/atoz/content/iganeph

I suggest that you discuss this with your nephrologist and see what may be indicated for treatment of your disease.  It is important to know if you are spilling any protein in your urine.

 

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