Category Archives: Birth Defects/Urinary Tract Abnormalities

My 8 year old daughter has a simple cyst on her right kidney pole 4.7cm ×3.9cm. Size of right kidney 8.9cm ×3.6cm ×3.6cm. What are our options? Can it be desolved or will it have to be surgical? Or will it go as she grows?

The problem that you describe is a urological problem.  I am an adult nephrologist and do not see children.  I also do not have any expertise in the surgical management of cysts in children. I suggest that you consult with … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Chronic Kidney Disease, Kidney-Related Health Questions, Nephrologist, Symptoms and Side Effects, Treatments, Urological Issues

My daughter is 7. While I was pregnant with her I was told that she had hydronephrosis in both kidneys. I was closely monitored for the remainder of my pregnancy until they decided to induce labor early because her kidneys were becoming to swollen. When she was born she was immediately taken for an ultrasound testing. They said her kidneys were normal and functioning at 100%. Her pediatrician told me that the hydronephrosis had taken care of itself. 5 years later she had severe pain one day and I rushed her to the ER where I learned that my daughter now only has one kidney. Which was severely infected I also learned that she has severe hydronephrosis in her remaining solitary left kidney. She has had numerous UTI since that day. Also, 2 seperate episodes where she could not urinate for some 12+ hours. With the last episode being the worst in July. She has been tested for stones and they cannot find anything. The doctor just yesterday told me he didn’t believe based on all of her tests that she’s ever had a stone. But he also had no further insight as to what could be going on. I don’t understand why she’s had hydronephrosis or how it came back after being cleared as an infant. We have been seeing a urologist for 2 years now and still do not have much to go on for answers. So I guess I’m asking you if you have any advice or opinions in what direction we should be looking? Is there a way to fix this or is it just sit and wait until her kidney can’t withstand much more, start dialysis and go on the transplant

I am an adult nephrologist and do not see children.  The problem that you describe is a urological problem and I have no expertise in this area.  Your daughter may need to see a pediatric urologist, if she has not … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Hydronephrosis and Hydroureter, Kidney-Related Health Questions, Nephrectomy / One kidney, Pediatric Issues, Pregnancy / Kids, Symptoms and Side Effects, Treatments, Urological Issues

Dear doctor my child is 6 months old. He is forcing to pee, and has swelling some mornings. Is he having disease?

I am unable to make a specific diagnosis based on the information that you present.  I am an adult nephrologist and do not see children.  I suggest that you review these symptoms with your pediatrician and see if there is … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Pregnancy / Kids

I am currently 24 weeks pregnant. My baby has been diagnosed with BMCDK. I am looking for a doctor who is willing to offer amnioinfusions and provide care with a result not ending in death of the fetus. If you can provide recommendations that would be amazing.

I will assume that the acronym BMCDK stands for Bilateral Medullary Cystic Dysplastic Kidneys.  This is a congenital disorder where both kidney are usually small, full of cysts and generally are not functional.  I am unaware of anyone performing such … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Chronic Kidney Disease, Kidney Cysts, Kidney-Related Health Questions, Laboratory Testing, Nephrologist, Pediatric Issues, Pregnancy / Kids, Treatments

My brother was diagnosed with complete kidney failure at 18 yrs old (Hypertension/Jaundice). At that time, 1980, his diagnosis was multi-cystic kidney disease, and after two transplants he died at 25 in 1983. I was told his disease was not hereditary. My son born in 1990, had no left kidney. Enlarged right functioning kidney. Like my brother he was born with a undescended left testicle. He is 28 now with recent ureterocele dx/repair. Should he consider genetic testing prior to having children of his own?

The syndromes that you are describing are generally known as Congenital Abnormalities of the Kidneys and Urinary Tract (CAKUT) and are generally thought of as genetic disorder or disorders that are thought to be hereditary. I do not think there … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Kidney Failure, Kidney-Related Health Questions, Laboratory Testing

I can’t pee. How do I know if stopped making urine?

I suggest that you consult with your physician.  If you have not been able to produce urine in over 24 hours, this must be evaluated urgently by your physician.    

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing

My son is 12 and evidently was born with a blockage to one kidney, which is now only functioning 3%. He had one UTI when he was 6, which was treated with antibiotics, but other than an annual urinalysis at check-ups, no tests were ever done to detect the problem. He felt good up until a year ago, when he started having a lot of headaches and nausea a couple of times a week. His pediatrician misdiagnosed him with migraines in January and no testing was done until he ended up in the e.r. several weeks ago and they (thankfully) ran many tests on him. What would be considered to be “standard” care for a 6 year old boy with a UTI that seems to respond to antibiotics but he has no other symptoms? Would a renal ultrasound be considered to be “standard?” Or for a 12 year old boy with migraine- like symptoms and a history of 1 UTI? For the time being he’s stable with the help of blood pressure meds. as we wait for his surgery and he’s actually feeling better than he has in a year. His other kidney is thankfully “fantastic,” according to the two specialists who read his scans. They are very well-respected and I trust their judgement. My son has to have a laparoscopic nephrectomy. What is the typical recovery from a laparoscopic nephrectomy like? I’ve been told there’s a 4 day recovery but that it will take quite a while after that for him to get back to 100%. I’m trying to figure out how much support he might need from his school after his surgery. Will he be able to walk from class to class? Carry a backpack?

The questions that you ask are surgical questions that come under the expertise of a pediatric urologist.  I am a nephrologist and do not see children.  Hence, the questions that you ask need to be addressed by a urologist and … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Kidney-Related Health Questions, Laboratory Testing, Pediatric Issues, Pregnancy / Kids, Symptoms and Side Effects, Treatments

My three year old son is in remission with Stage II WILMS FH. He had a left radical nephrectomy. He is currently being followed by oncology. Recent test have shown that his GFR was a 38, according to the pediatric calculator. His BUN was 13 and Creatinine ranged from .40 to .45. The pediatrician and oncologist do not seem to be worried. We would like to be seen by a nephrologist but they do not seem to think it is necessary. What is your thoughts?

Wilm’s tumors are treated by a urologist.  Removing one kidney should cause a reduction in the overall kidney function.  That is an expected result from removing one kidney.  I suggest that your son continue to consult with his pediatrician.  Referral … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Chronic Kidney Disease, GFR, Kidney-Related Health Questions, Laboratory Testing, Nephrologist, Pregnancy / Kids, Symptoms and Side Effects, Treatments

My son, now 5 years old was diagnosed with Hydronephrosis in both kidneys before birth. He was monitored for 2 years and was released of urology and nephrologist but the past few weeks he’s showed high blood pressure, very metallic smelling hair and breath. He has been wetting his bed at night and cannot seem to stop sweating and drinking excessive water. Should I get a lab work up?

I suggest that you consult with your son’s pediatrician for an examination.  Laboratory testing may be needed but a good examination by his pediatrician will be important to make sure the proper tests are performed. For more information on children’s … Continue reading

Posted in Ask the Doctor, Bed-Wetting, Birth Defects/Urinary Tract Abnormalities, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Hypertension/High Blood Pressure, Kidney-Related Health Questions, Laboratory Testing, Pediatric Issues, Pregnancy / Kids, Symptoms and Side Effects, Treatments

Hi, My daughter postnatally was picked up to have dilated kidneys (both) She had surgery on both of these at 6 months and then 12 months (JJ Stints) the right one has been successful with it now looking normal. The left one is now stretched and still shows signs of dilation. She is 7 years old the right one measures 9.46cm and the left is 11.24cm. She has recently had an MRI and this showed the right one draining ideally the left one did drain however it was slower. The consultant has advised that we will follow up in 6 months with another scan as the left one may just be bigger and it might just be the way it looks now. My question is, with your experience would you have expected the left one to stabilise by now? They gave her a medication to reduce the time of the scan however would this have adjusted the results? (It took an additional 5 minutes for the larger kidney to drain under the medication so does this mean without it, is the urine sitting then and not draining or it does drain just a lot slower? If so is this of concern) Any advice on the long term management to avoid future problems would be appreciated. We have all images available and notes if required.

The problem that you describe is a urological problem.  I am a nephrologist and have no surgical experience with childhood obstructive kidney disease.  This problem is best handled by a urologist and not a nephrologist.  I suggest that you continue … Continue reading

Posted in Ask the Doctor, Birth Defects/Urinary Tract Abnormalities, Chronic Kidney Disease, Kidney-Related Health Questions, Symptoms and Side Effects