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Category Archives: Glomerulonephritis
Dear Dr. Spry, I am 31 years old. I am a man. I have glomerulonephritis and FSGS for 7 years. Now I take my medicine (Neoral sandimmun 4*25, Prednol 4mg/ day, Olmetec 20mg/day, Drisentin1*1) regularly but last 6 months I had problem with edema around my ankle. Besides edema I have muscle weakness and tiredness. I can’t move as I want to do. I am doing sport but It effects me very much. I can not go on long. I want to ask you how long I should take this kind of treatment? Is there any other treatments for this disease? I am desperate about my future.
Focal segmental glomerulosclerosis (FSGS) is a very difficult disease to treat. In many cases, the disease is not cured but rather controlled. If you have concerns about your treatment, this should be discussed with your nephrologist. I am unable to … Continue reading →
Hi Doctor, My partner was diagnosed 5 years ago, at the age of 26, with a rare Kidney disease called mesangial capillary glomerulonephritis. He has been on steroid treatment and also cholesterol, blood pressure and other pills. He has suffered with many side effects including depression, mood swings, frequency of urination, dizziness, blurred vision and most recently the beginnings of osteoporosis. I have heard of Chinese Medicine Osmotherapy and read about some studies on www.ncbi.nlm.nih.gov and it seems very effective in treating patients with IgA nephropathy. I was wondering if you think this might work for my partner too? and whether it could be used in conjunction with his current medications? My second question is how likely do you think it would be for us to pass this disease down to a child? Thank you for any help you might give us… I worry about our future family and hope that someone will find a cure soon.
Mesangiocapillary glomerulonephritis (MCGN) is an uncommon kidney disease. There are many different forms of MCGN that have been described. Chinese medical osmotherapy is of no benefit in any kidney disease that I am aware. I cannot comment on whether you … Continue reading →
Hello. Can antihistamine nose sprays affect negatively glomerulonephritis patients? I read on the instructions to be careful with these in those who have kidney problems. I suffer from rhinitis, so I started using them. I am 34 years old with stage 2 kidney disease, normal kidney function, blood pressure and no protein in urine.
I have generally used anti-histamine medications in patients with chronic kidney disease (CKD) and found them to be safe. However, as with all medications, you should discuss this with your physician and make sure that they do not interfere with … Continue reading →
I have been diagnosed with glomerulonephritis disease since I was in my 20’s due to an untreated illness as a child. I was on various meds throughout my adult life until I reached 64. At that time my GFR indicated the need for dialysis. I have been on hemodialysis for 2-1/2 years and I am on the transplant list with a wait time in NY state of about 5 years. My question is regarding live vaccines. My wife and I watch our infant grandson during the work week. He has just received the rotavirus vaccine and within 24 hours of that, I have been experiencing symptoms of severe diarrhea and low appetite. As a hemodialysis patient, am I in any danger of responding badly to a live virus vaccine? My doctor is off for the next few days and I thought I would try and see if I could get an answer from you.
Live virus vaccines such as the Shingles vaccine, Mumps, Measles and Rubella vaccine, Rotavirus vaccine and others can be given to dialysis patients, but generally are less effective at inducing immunity that in the non-dialysis population. After you are transplanted, … Continue reading →
My nephew has been diagnosed with C3 complementary component chronic kidney disease. Are there any diets or experimental treatments specific to this type of kidney disease?
C3 hypocomplementemic glomerulonephritis which is sometimes called dense deposit disease (DDD), is a relatively rare form of glomerulonephritis. It is more common in young people than in older individuals. It is commonly the result of genetic complement deficiency states. There … Continue reading →
My fiancé is only 22 years old and went to the doctor a few weeks ago where he found out his blood pressure was 216/135. The doctor took blood work because she figured his kidneys were shutting down, and they were. She sent us to the local hospital where he was hospitalized for two weeks. His creatinine soared to a 6.4, causing his 14% kidney function to drop down to an 11% function. The first few nights in the hospital, he experienced major back and leg pain. It was so bad, it brought him to tears. Later during the first week, he was so swollen that he hardly looked like himself. He went from 175 lbs to 190 lbs when he was in the hospital. The biopsy came back that he had chronic kidney disease. They said his kidneys were badly scarred, but they were still their normal size. After closely examining his case, they diagnosed him with acute interstitial nephritis. My first question is, why did he just start swelling and having pain when he was in the hospital? My other questions come from this part of the story. They put him on a diet in the hospital labeled “renal regular.” He progressively got worse. Once he got down to 11% function, he told them to go on and put him on dialysis. He has been on dialysis for two weeks so far, and his creatinine is down to a 2.6 and his function is up to 22%. They are letting him off of dialysis today. I have always heard that kidney disease patients should limit protein intake, but the nurses at the dialysis clinic said he is swelling because his albumin is so low, and he needs plenty of protein for the next couple months to get it back up to normal levels. How does this make sense? Especially that he’s now off of dialysis, should he be taking in protein? I understand that he is losing too much protein through his urine, but then why would other patients be told to limit intake?
I no longer recommend protein restriction in patients who are on dialysis or who have chronic kidney disease with excess protein in the urine. This was a common recommendation 15 years ago, but studies done in patient on dialysis and … Continue reading →
I’m 17 and was recently diagnosed with membranous nephrology and possibly tested positive for lupus and I have many questions as to how this will impact my living.
Membraneous nephropathy is a relatively common cause of kidney disease that results in large amounts of protein in the urine. It is form of glomerulonephritis and requires a kidney biopsy in order to establish a specific diagnosis. The Mayo Clinic … Continue reading →
I am 33 years old woman with glomerulonephritis, stage two, no protein in urine -and if not stressed- normal blood pressure. I want to ask if Zanax is safe to take regularly for my kidney problems? I also take 150 mg lumaren, 2 pills of fish oil and a multivitamin each day. I have chronic (functional) dyspepsia from chronic anxiety due to my medical tests and mild Lpr.
I am unable to comment on the safety of medication without performing a complete history and physical examination. You must discuss the risks of these medication with your physician. Alprazolam (Xanax) is generally a safe medication in patients with chronic … Continue reading →
My 13 year daughter was admitted in hospital for hematuria accompanied by chicken pox. She was given irrigation, drips, antibiotics as creatinine reached 7.7. Urea about 52. Hgb went down to 6. A bottle of blood was also infused. Creatinine slowly went down till 1.4 & she was released. Now UCE all ok, Hgb 11.1. Doctors advised Epokine 4000 units once weekly with Calcium tablets daily. In UDR, 20 red cells. Please tell me what to do? After discharge from hospital she has taken 4 injections of Epokine. Should it be stopped?
I cannot provide a specific diagnosis based on the information that you present. It sounds like your daughter had a episode of nephritis but I cannot tell how bad this might have been. Erythropoietin (Epokine) should be administered to decrease … Continue reading →
I appreciate your time! I am considering a position and would appreciate your opinion on Acthar Gel for use in patients with proteinuria associated with Nephrotic Syndrome. Any input you have, pro or con, is appreciated.
Acthar gel is a treatment that has been approved for the treatment of nephrotic syndrome in adults and some children with rare neurological diseases. I have limited experience with the drug. It is very expensive. This drug should only be … Continue reading →