Category Archives: Medullary Sponge Kidney

Dear Dr. Spry, My cousin brother has been diagnosed with MSK in China. After the doctor did surgery of kidney stone removal, they said his kidney is not able to work again. His creatinine has risen up to 2000+, and now he is under Hemodialysis treatment. I want to know if there is any advance treatment can help this situation. The kidney failure started last week. In China, the doctor says the process is irreversible and he has to live his life with Hemodialysis or perform kidney transplant. It is so sad and my cousin brother is only 29 years old. Thank you for all your help.

Medullary Sponge Kidney (MSK) can cause kidney failure but it is unusual. I am not able to make a specific diagnosis with the information that you provide. I am unsure if this is permanent kidney failure or acute kidney injury. … Continue reading

Posted in Acute Kidney Injury, Ask the Doctor, Chronic Kidney Disease, Dialysis, Kidney-Related Health Questions, Medullary Sponge Kidney, Transplantation

In September 2008, I was diagnosed with nephrocalsonsis and MSK bilaterally. I have had 15 lithotripsy 10 stents and constant UTIs. I currently have an 8x4mm 4mm 3mm and 2mm stones in my left kidney. Have been to several doctors and nobody seems to find the cause or help slow down the processing of the stones. I have all normal labs nothing that shows any sign of a cause. Any help or suggestions, where I should research would be great.

Medullary Sponge Kidney (MSK) and nephrocalcinosis are diseases of the kidney associated with kidney stones. This is likely the cause of your recurrent kidney stones. The best resource for MSK is at the National Institutes of Health at: https://www.niddk.nih.gov/health-information/kidney-disease/children/medullary-sponge-kidney We … Continue reading

Posted in Ask the Doctor, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney

Dear Doctor, I was born in dallas Texas with Beckwith-Wiedemann syndrome. Now I am 39 years old. Last 10 years it was all right. Just in my kidney, I have stones and they told it is a Sponge Kidney. Can you advice me to follow with a specialist regarding my case?

I have no experience with the Beckwith-Wiedeman syndrome. I do not know of any association with Sponge Kidney. It is mostly associated with tumors of the kidney and occasional Wilm’s tumors of the kidney. I would recommend that you see … Continue reading

Posted in Ask the Doctor, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney, Nephrologist

Dear Doctor, I am 36, height 5.4 feet, weight 154.324 lbs. I am worried because of my kidney related issues. Recently, I went for whole abdomen USG and the report I received there shows everything normal except Right Kidney with ” Multiple medullary cyst noted. Up to 17 mm, with thin fibrous septa within. One cyst noted at midpole.” Please suggest treatment and remedy for this problem.

I am unable to make a specific diagnosis without performing a complete history and physical examination. There is a condition known as medullary cystic disease which can be condition that you were born with. This can also be called unilateral … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Medullary Sponge Kidney, Urological Issues

I don’t have kidney disease however I do have a history of calcium oxylate stones and was diagnosed with medulary sponge kidney about 10 years ago. I am a 45YO female, 5’2″, overweight by about 40-60 pounds (clinically obese barely) and would like to get rid of the extra weight. I am being treated for hypertension (controled with low-dose meds), have had my gall bladder removed, and do have some edma in by lower legs. I am looking for a plant-based protein powder that is kidney friendly (and tastes good, is not chalky or too terribly expensive). Do you have any recommendations?

I do not recommend a protein supplement. I recommend that you try a low salt DASH diet. You have kidney disease because you have been diagnosed with medullary sponge kidney and you have kidney stones. The DASH diet has been … Continue reading

Posted in Ask the Doctor, Diet/Nutrition, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney

I have MSK kidney and sprained knee. It is taking longer to heal than what was expected. Can MSK kidney effect how the body heals from injuries. I also have chronic bladder crystals (stones) as well.

I am not aware of any effects of Medullary Sponge Kidney (MSK) might have an delay of recovery form knee injury.  In some cases, MSK can be associated with a metabolic acidosis related to a renal tubular acidosis, which might … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Medullary Sponge Kidney

Hello. My 56 yr old brother has MSK and NDI. He started hemodialysis 5 yrs ago. Recently, he tried peritoneal dialysis at home, which did not work for him. Could it be due (solely) because of the NDI? Thank you.

I am going to assume that MSK is medullary Sponge Kidney and that NDI is Nephrogenic Diabetes Insipidus. The NDI may make him more likely to develop dehydration and make dialysis more difficult. I do not think the reason that … Continue reading

Posted in Ask the Doctor, Dialysis, Kidney-Related Health Questions, Medullary Sponge Kidney

I need help. I am a generally healthy, active 77 year old male who was diagnosed several years ago with Stage 3 kidney disease. My GFR typically stayed in the 45 to 48 range. In Sept. of 2017 I came down with a severe case of Shingles that attacked my intestines and lasted over 10 weeks. This caused extreme urination and bowl movement problems, which still exist. I also had two bouts of diverticulitis shortly after that, eventually resolved with Cipro and Flagyl.  My GFR dropped from 48 to 29 during this time. A month later it came back to 39. My Gastroenterologist put me on 1 and a half doses of Miralax for bowl movement. Three months later now my GFR dropped to 19. Both doctors and your web site say Miralax is safe with Stage 3 kidney disease. No other medications or diet have changed. No explanation whatsoever from my kidney doctor. What do I do? Seek out another Nephrologist? I refuse to sit back and wait till I have complete kidney failure.

I do not think that Miralax could cause kidney damage.  However, all of the illness and medication that you took to treat your bowel problems certainly could have caused an acute kidney injury (AKI).  This AKI can take some time … Continue reading

Posted in Acute Kidney Injury, Ask the Doctor, Kidney-Related Health Questions, Medication and Kidney Function, Medullary Sponge Kidney

For the past few years, my husband has passed one kidney stone per year (that we know of) so far, two of these have brought him to the emergency room. My concern is, what are the long-term effects of repeated kidney stones? Is this something that over time, will severely injure his kidneys? Thank you.

Recurrent kidney stone disease can cause repeated blockage of the kidney and can be associated with other kidney diseases such as nephrocalcinosis and medullary sponge disease. Recurrent kidney stones can also be prevented by proper diagnosis and proper treatment. Hence, … Continue reading

Posted in Ask the Doctor, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney, Nephrologist

My 17-year old daughter was diagnosed with Medullary Sponge Kidney last week after an afternoon in the ER with left back pain. No kidney stone was found. She had one other episode with pain 9 months ago. Pain lasted a couple of days and she has been struggling with fatigue. She plans to major in dance next year in college. But after my research, I’m very concerned that she will not be able to pursue dance as a career with MSK. We are still waiting to see the Nephrologist. What are your thoughts on such a physically strenuous career with this diagnosis? And do you have a physician recommendation who specializes in MSK.

I cannot give medical advice without performing a complete history and physical examination. Neither I nor the National Kidney Foundation provide referrals. I suggest that you await the opinion that you get from the nephrology referral. You can learn more … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Medullary Sponge Kidney, Nephrologist