Category Archives: Medullary Sponge Kidney

My ultrasound showed “probable right kidney Nephrocalcinosis. Sponge kidney. Simple cyst noted. Is this a concern?

Yes. A sponge kidney with Nephrocalcinosis is prone to form kidney stones and can cause progressive kidney disease with time. You can learn more about sponge kidney at our web site: https://www.kidney.org/atoz/content/medullary-sponge-kidney The most comprehensive review of medullary sponge kidney … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney

Our daughter now aged 18 years was diagnosed with Bilateral Nephrocalcinosis in year 2010. Her Creatinine level was 1.7 in 2010. She had enlarged kidneys with calcium deposition. Her kidney function has since then gradually receded. Following are her test results in 2018: • Creatinine level has reached 4.3 • GFR around 15. • Hemoglobin keeps varying, now at 6.5. • Serum Iron is 21 µg/dl and saturation is 6% • PTH Intact is 415 pg/ml • Echo test and Liver Function Test are normal. For low hemoglobin she is taking Iron supplements and also IV Iron drips along with Darbepoetin injections sometimes. Calcium supplements and Sodamint (bicarbonate tablets) are being advised by doctors. She was under medication for High BP, but its now under control. She does not show any kind of symptoms like vomiting or swellings as asked by Doctors. Doctors are now asking us to be prepared for dialysis and kidney transplant in near future. We look forward to any feedback or information which can help us prevent dialysis and transplant by reducing her Creatinine level and improving her kidney function. Kindly revert with your positive feedback.

There is no known treatment for or any medication that will reverse kidney failure caused by nephrocalcinosis. In most cases, this is related to medullary sponge kidney disease. From your description, it sounds like your daughter is being properly treated. … Continue reading

Posted in Ask the Doctor, Kidney Failure, Kidney-Related Health Questions, Medullary Sponge Kidney

I have medullary sponge kidneys. Two big surgeries, cystoscopes, lithotripsies. I have pain when the stones are in the kidneys, none in ureter or urethras. Thanks.

Medullary Sponge Kidney can be associated with a deficiency of citrate production by the kidney. You should be evaluated by a nephrologist and have 24 hour urine testing to see if there are possible treatments for your kidney stone disease. … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Diet/Nutrition, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney, Nephrologist

My daughter has Beckwith Wiedemann Syndrome, and was recently diagnosed with medullary sponge kidney. Her symptoms, frequent UTIs, blood clots in the urine, extreme back pain, and numerous kidney stones became worse after she became pregnant and after the birth of her child. Is there any information available about risks to her health associated with another pregnancy?

I am not familiar with the manifestations of Beckwith-Wiedemann syndrome and have no experience with this genetic disorder. I am unaware of any information about pregnancy and this disease. Medullary sponge kidney is a relatively common disorder that can be … Continue reading

Posted in Ask the Doctor, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney, Pregnancy / Kids

Dear Dr. Spry, My cousin brother has been diagnosed with MSK in China. After the doctor did surgery of kidney stone removal, they said his kidney is not able to work again. His creatinine has risen up to 2000+, and now he is under Hemodialysis treatment. I want to know if there is any advance treatment can help this situation. The kidney failure started last week. In China, the doctor says the process is irreversible and he has to live his life with Hemodialysis or perform kidney transplant. It is so sad and my cousin brother is only 29 years old. Thank you for all your help.

Medullary Sponge Kidney (MSK) can cause kidney failure but it is unusual. I am not able to make a specific diagnosis with the information that you provide. I am unsure if this is permanent kidney failure or acute kidney injury. … Continue reading

Posted in Acute Kidney Injury, Ask the Doctor, Chronic Kidney Disease, Dialysis, Kidney-Related Health Questions, Medullary Sponge Kidney, Transplantation

In September 2008, I was diagnosed with nephrocalsonsis and MSK bilaterally. I have had 15 lithotripsy 10 stents and constant UTIs. I currently have an 8x4mm 4mm 3mm and 2mm stones in my left kidney. Have been to several doctors and nobody seems to find the cause or help slow down the processing of the stones. I have all normal labs nothing that shows any sign of a cause. Any help or suggestions, where I should research would be great.

Medullary Sponge Kidney (MSK) and nephrocalcinosis are diseases of the kidney associated with kidney stones. This is likely the cause of your recurrent kidney stones. The best resource for MSK is at the National Institutes of Health at: https://www.niddk.nih.gov/health-information/kidney-disease/children/medullary-sponge-kidney We … Continue reading

Posted in Ask the Doctor, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney

Dear Doctor, I was born in dallas Texas with Beckwith-Wiedemann syndrome. Now I am 39 years old. Last 10 years it was all right. Just in my kidney, I have stones and they told it is a Sponge Kidney. Can you advice me to follow with a specialist regarding my case?

I have no experience with the Beckwith-Wiedeman syndrome. I do not know of any association with Sponge Kidney. It is mostly associated with tumors of the kidney and occasional Wilm’s tumors of the kidney. I would recommend that you see … Continue reading

Posted in Ask the Doctor, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney, Nephrologist

Dear Doctor, I am 36, height 5.4 feet, weight 154.324 lbs. I am worried because of my kidney related issues. Recently, I went for whole abdomen USG and the report I received there shows everything normal except Right Kidney with ” Multiple medullary cyst noted. Up to 17 mm, with thin fibrous septa within. One cyst noted at midpole.” Please suggest treatment and remedy for this problem.

I am unable to make a specific diagnosis without performing a complete history and physical examination. There is a condition known as medullary cystic disease which can be condition that you were born with. This can also be called unilateral … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Medullary Sponge Kidney, Urological Issues

I don’t have kidney disease however I do have a history of calcium oxylate stones and was diagnosed with medulary sponge kidney about 10 years ago. I am a 45YO female, 5’2″, overweight by about 40-60 pounds (clinically obese barely) and would like to get rid of the extra weight. I am being treated for hypertension (controled with low-dose meds), have had my gall bladder removed, and do have some edma in by lower legs. I am looking for a plant-based protein powder that is kidney friendly (and tastes good, is not chalky or too terribly expensive). Do you have any recommendations?

I do not recommend a protein supplement. I recommend that you try a low salt DASH diet. You have kidney disease because you have been diagnosed with medullary sponge kidney and you have kidney stones. The DASH diet has been … Continue reading

Posted in Ask the Doctor, Diet/Nutrition, Kidney Stones, Kidney-Related Health Questions, Medullary Sponge Kidney

I have MSK kidney and sprained knee. It is taking longer to heal than what was expected. Can MSK kidney effect how the body heals from injuries. I also have chronic bladder crystals (stones) as well.

I am not aware of any effects of Medullary Sponge Kidney (MSK) might have an delay of recovery form knee injury.  In some cases, MSK can be associated with a metabolic acidosis related to a renal tubular acidosis, which might … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Medullary Sponge Kidney