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Category Archives: Minimal Change Disease
I have been diagnosed with Minimal change disorder at 39. Back in late October 2016, started having the symptoms, fluid retention in the lower extremities, foam in the urine, etc. My PCP was doing nothing but pill after pill until finally I went to the hospital. Blood tests, urine samples, hospital stay and kidney biopsy all came back with Nephrotic Syndrome, MCD. I am on steroid therapy, which is working. No auto immune disorder can be tied to my condition. No family history either. I have read up that in adults, an allergic reaction could cause MCD. I have asked my Nephrologist if running blood allergy tests could help narrow down the cause so I have something to work with after remission but he doesn’t think it would do any good. What are your thoughts and should I seek a second opinion? Thank you for any insight you give me.
Minimal Change Disease (MCD) also called “nil” disease is a common cause of sudden nephrotic syndrome and will cause sudden swelling with loss of protein in the urine (proteinuria). The cause has never been determined. It is thought to be … Continue reading →
My 18 year old son has just been diagnosed with Minimal Change Disease. When can I expect to see swelling to start going down? How do I know steroids and Ladin are working? How can I increase his albumin levels? Will he be on cholesterol meds from now on even if he has began a low sodium diet? Is there anything I can use at home to monitor his kidney functions, some type of urine strip or something? Should he be walking? How much fluids should he have per day? How much urine output should he have per day? Does lemons in water help or hurt in any way with treatment? Should he also be on ACE-inhibitors along with steroids, oasis, blood thinners, and cholesterol medication? Is there a support group for Dallas area for MCD? What nephrologists in Dallas area have treated MCD the most with significant experience and having a good outcome for patients? I would like as much information about the disease as possible. My son does not see his nephrologist for two weeks. Any insight you can provide regarding this disease would be greatly appreciative.
The questions that you ask are excellent questions and must be asked of the nephrologist who is caring for your son. Minimal change disease (MCD) is a common cause of nephrotic syndrome in young people and often responds within 6 … Continue reading →
I’m from Sri Lanka. I had MCD at 2 years age and relapsed again at the age of 14 years. During the relapse, a biopsy was performed and MCD was confirmed. Both the times I was treated with Prednisolone. Now I’m 30 years and I regularly (once a year) check the blood and urine. Urine Albumin, Creatinine, Triglyceride, PB, Cholesterol, etc are normal for more than 13 years now. 1. Is there a possibility of relapsing again? 2. Does this conditions affect my fertility? 3. Will it cause any implications on pregnancy? 4. Can I be a live kidney donor? Your valuable advice for the above are highly appreciated.
Minimal Change Disease (MCD) always has a chance of relapsing and causing the nephrotic syndrome again. There is no way to tell if you will relapse. You should continue to monitor your health including your kidney function testing with both … Continue reading →
Can Minimal Change Disease affect the height? I had MCD at age of 15 diagnosed and treated. Prior to it, just 4-5 months before, I had chicken pox. I am now 23 yrs old male, with height of 158 cms.
Minimal Change Disease (MCD) is commonly treated with corticosteroids (prednisone). Use of steroids such as prednisone can cause retardation of growth. This could be responsible for short stature.
My sister is suffering from MCD (Minimal Change Disorder) Recently we did Kidney Biopsy and came to know about MCD. Now she is on medication i.e. steroids. From last two days, she is getting severe pains in lower back and also water coming out from her skin. Please suggest if any pain killers which can be given to her.
I cannot recommend a medical treatment without performing a complete history and physical examination. I cannot make a specific diagnosis based on the information that you present. I suggest that you discuss this with the physicians who are caring for … Continue reading →
I was diagnosed with steriod-sensitive Nephrotic Syndrome at 3 years old (with no other distinctions as to the type, like Minimal Change Disease or anything). Throughout my life I was told that I would “grow out of it.” I’m 21 now and I still have relapses every 1-2 years. Does this persisting into adulthood decrease the chances of it ever going away? Do you have any even rough statistics giving the likelihood of becoming permanently relapse-free after pediatric NS persists to adulthood?
Steroid sensitive nephrotic syndrome is a diagnosis usually used in childhood nephrotic syndrome because of the greater risk of kidney biopsy in the very young. It is defined as a combination of edema, usually of sudden onset, hypercholesterolemia, and greater … Continue reading →
I’m a 28 year old male with MCD. I was diagnosed with it back in 2010 through a kidney biopsy. After being treated with prednisone for about 6 months I was on my way to remission. Everything was fine until last spring. I went to the emergency department after loosing about 25lbs while dealing with what felt like a really bad cold. They thought it was pneumonia gave me antibiotics and sent me on my way. That didn’t work. My coughing worsened to the point that I couldn’t keep food down and was throwing up constantly. After about 4 months of seeing 3 specialists and 2 separate lung biopsy’s they concluded it was blastomycosis a fungil infection in my lungs. I’ve been on antifungil meds for almost 5 months. The problem is my MCD started to flair up again in all of this and my kidney specialist is at a loss as to what we can do. Now the fungus seems to be spreading and they won’t put me on steroids because they figure that will accelerate the spreading of the fungus. But I’m spilling about 15 grams a day of protein right now and they are getting very concerned. I was wondering if u had any recommendations. Maybe you could also explain what will happen if the protein levels continue to rise, they are very concerned but I don’t really understand how bad the situation is.
Minimal Change Disease (MCD) is a protein losing disease of the kidney that is commonly treated with prednisone. It does tend to recur. You have a very complex illness and I am not able to recommend medical treatment without performing … Continue reading →
I have been a kidney patient since the age of 2. I have been treated with steroids and have gotten good results. I had a biopsy done, which says minimal changes. But till today, I am not cured. Today, I am of 22 years old and have stopped my medicine for last 2 years but now again there is loss of protein with no swelling. The doctor has given me medicine to lower my protein and cholesterol, which are lowering slowly. What is the treatment for my disease if no swelling is present but there is still protein present?
Minimal change disease can also present in the form you describe in your question, which is relapsing nephrotic syndrome or steroid dependent nephrotic syndrome. There are a number of ways of treating this, but each has risks and benefits that … Continue reading →