Category Archives: Nephrotic Syndrome

If I have Nephrotic Syndrome and am at stage 3b CKD, can I still take the meds needed to try and put the Nephrotic Syndrome into remission or does that happen at all? Or is it too late? My Doctor didn’t want to do so due to COVID-19 being so high at the time but would it be possible to start now? I am in New Mexico and have been vaccinated. Any suggestions would greatly be appreciated as I don’t know everything about CKD that I should. My son is helping as much as he is able to. Thank you.

The Nephrotic Syndrome is defined as the loss of more than 3.5 grams of protein in the urine daily, low serum albumin, elevated blood cholesterol and swelling. The treatment of Nephrotic Syndrome usually involves a kidney biopsy in order to … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, COVID-19, Kidney Biopsy, Kidney-Related Health Questions, Nephrologist, Nephrotic Syndrome | Comments Off on If I have Nephrotic Syndrome and am at stage 3b CKD, can I still take the meds needed to try and put the Nephrotic Syndrome into remission or does that happen at all? Or is it too late? My Doctor didn’t want to do so due to COVID-19 being so high at the time but would it be possible to start now? I am in New Mexico and have been vaccinated. Any suggestions would greatly be appreciated as I don’t know everything about CKD that I should. My son is helping as much as he is able to. Thank you.

I have lifelong nephrotic syndrome and I want to know if it is safe to get the COVID-19 vaccine, and it won’t trigger a relapse? I got a tetanus shot years ago and it triggered a relapse. I’m scared.

This is a difficult issue. You are correct that recurring bouts of nephrotic syndrome can be triggered by vaccinations but they may also be triggered by infections such as the COVID 19 infection itself. Many such viral and bacterial infections … Continue reading

Posted in Ask the Doctor, COVID-19, Kidney-Related Health Questions, Nephrotic Syndrome | Comments Off on I have lifelong nephrotic syndrome and I want to know if it is safe to get the COVID-19 vaccine, and it won’t trigger a relapse? I got a tetanus shot years ago and it triggered a relapse. I’m scared.

Good evening, my 17 year old daughter has been diagnosed with Nephrotic syndrome. She is going to have a kidney biopsy and I am scared. Could you guide me Dr.? Thanks.

The nephrotic syndrome means your daughter is spilling an excessive amount of protein from her kidneys into her urine. There are a number of kidney diseases that can present with the nephrotic syndrome and the best way to tell which … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Biopsy, Kidney-Related Health Questions, Nephrotic Syndrome | Comments Off on Good evening, my 17 year old daughter has been diagnosed with Nephrotic syndrome. She is going to have a kidney biopsy and I am scared. Could you guide me Dr.? Thanks.

Hi. Good morning. My 6 yr. old son has nephrotic syndrome. We are not able to continue his monthly check up due to Covid 19 virus for 3 months. He’s taking 5ml prednisone and calcium once a day. Recently he’s struggling in peeing. His penis is like clogged or something. His urine comes out little by little only. But he said that it’s not painful. What should we do?? I’m hoping for an answer. Thank you.

This is not normal and your son needs to be examined. The inability to pass urine requires further evaluation. I suggest your son be examined by his pediatrician. For more information about childhood nephrotic syndrome, please visit: https://www.kidney.org/atoz/content/childns

Posted in Ask the Doctor, Kidney-Related Health Questions, Nephrotic Syndrome, Pediatric Issues | Comments Off on Hi. Good morning. My 6 yr. old son has nephrotic syndrome. We are not able to continue his monthly check up due to Covid 19 virus for 3 months. He’s taking 5ml prednisone and calcium once a day. Recently he’s struggling in peeing. His penis is like clogged or something. His urine comes out little by little only. But he said that it’s not painful. What should we do?? I’m hoping for an answer. Thank you.

Hi Dr. Spry, My wife has Nephrotic Syndrome disease. We discovered in Feb. 2017 and her 24HR URINE PROFILE result was 4180. She used “Cellcept” and her result was still very high. It’s 2400. Is there any other medicine to get the best result? I appreciate it. Thanks.

Treatment of nephrotic syndrome usually requires that a kidney biopsy is performed. Treatment is based on a specific diagnosis and a specific diagnosis requires a kidney biopsy. If your wife has not had a kidney biopsy, I suggest one be … Continue reading

Posted in Ask the Doctor, Kidney Biopsy, Kidney-Related Health Questions, Nephrologist, Nephrotic Syndrome | Comments Off on Hi Dr. Spry, My wife has Nephrotic Syndrome disease. We discovered in Feb. 2017 and her 24HR URINE PROFILE result was 4180. She used “Cellcept” and her result was still very high. It’s 2400. Is there any other medicine to get the best result? I appreciate it. Thanks.

I’m on dialysis for the past 18 months. I have been having problems sitting in the chair at the dialysis center for the 4 hours needed 3 times a week. I get extreme pain in my back, buttock cheeks and spine, legs and get extreme cramps in my left hand (the arm with the fistula) and at other times, cramps all over every muscle in my body–even those I never knew I had! The cramps last even the following days when I am not on dialysis. Also got an infection in the fistula (which is thank goodness is healing after months.) I am not a candidate for any other form of dialysis except that in a center. I have diabetes and related neuropathy which acts up while I am in the chair. I take strong pain killers but it does not help. I come to the center with pillows, blankets and a yoga mat to put on the chair but to no avail. I try keeping my legs up, reclining the back of the chair, still no help. I also understand that I can’t take muscle relaxers since I’m on dialysis. I’m sort of okay for the first 1-2 hours then the pain notches up to #10 level. I know it’s impossible for you to determine a specific reply without my full history and an exam, but on a general basis, if I ever decide enough is enough and I want to either skip a day or more of dialysis (especially if I am otherwise ill) what would be the ramifications? Also, if I just can’t take it anymore and want to permanently stop, would the death be more painful than continuing with dialysis “forever”? Is there a generalization as to how swiftly death would come (not considering the impact of other medical conditions?) Thanks for any answers and/or help you can provide

I am very sorry to hear of your situation.  This sounds like a horrible experience for you.  Unfortunately, I have had experience with other patients in your situation and it is always a very difficult conversation.  It is difficult because … Continue reading

Posted in Ask the Doctor, Dialysis, Kidney-Related Health Questions, Nephrologist, Nephrotic Syndrome | Comments Off on I’m on dialysis for the past 18 months. I have been having problems sitting in the chair at the dialysis center for the 4 hours needed 3 times a week. I get extreme pain in my back, buttock cheeks and spine, legs and get extreme cramps in my left hand (the arm with the fistula) and at other times, cramps all over every muscle in my body–even those I never knew I had! The cramps last even the following days when I am not on dialysis. Also got an infection in the fistula (which is thank goodness is healing after months.) I am not a candidate for any other form of dialysis except that in a center. I have diabetes and related neuropathy which acts up while I am in the chair. I take strong pain killers but it does not help. I come to the center with pillows, blankets and a yoga mat to put on the chair but to no avail. I try keeping my legs up, reclining the back of the chair, still no help. I also understand that I can’t take muscle relaxers since I’m on dialysis. I’m sort of okay for the first 1-2 hours then the pain notches up to #10 level. I know it’s impossible for you to determine a specific reply without my full history and an exam, but on a general basis, if I ever decide enough is enough and I want to either skip a day or more of dialysis (especially if I am otherwise ill) what would be the ramifications? Also, if I just can’t take it anymore and want to permanently stop, would the death be more painful than continuing with dialysis “forever”? Is there a generalization as to how swiftly death would come (not considering the impact of other medical conditions?) Thanks for any answers and/or help you can provide

My husband and I are expecting our first child. We just received our genetic testing results back and we were told that we are both carriers for congenital nephrotic syndrome. We are being told that there is a 25% chance that our baby will have the syndrome and if he or she does then he or she will need a kidney transplant. Is a kidney transplant for a newborn with this syndrome done right away? If so what is the survival rate for this type of procedure? Are there any other treatment plans or is there anything that my husband and I could do now to better prepare for that potential possibility that our baby may need a transplant?

Most transplant programs will require the infant to achieve a specific weight prior to performing a kidney transplant.  This has to do with the infant achieving a sufficient weight and size so that the transplant can technically be performed.  The … Continue reading

Posted in Ask the Doctor, Dialysis, Kidney-Related Health Questions, Nephrologist, Nephrotic Syndrome, Transplantation | Comments Off on My husband and I are expecting our first child. We just received our genetic testing results back and we were told that we are both carriers for congenital nephrotic syndrome. We are being told that there is a 25% chance that our baby will have the syndrome and if he or she does then he or she will need a kidney transplant. Is a kidney transplant for a newborn with this syndrome done right away? If so what is the survival rate for this type of procedure? Are there any other treatment plans or is there anything that my husband and I could do now to better prepare for that potential possibility that our baby may need a transplant?

My dad is 79 years old and is #11 in the world with Anti-LRP2. He is at SLUH. Going down very quickly. He is on dialysis. Is there anyway they can bypass the kidneys completely to keep the proteins in his blood vessels and out of his body?

I will assume the Anti-LRP2 stands for “Anti-low-density lipoprotein receptor related lipoprotein 2” kidney disease.  I have no experience with this disease. This appears to be a very rare, recently recognized cause for severe nephrotic syndrome and glomerulonephritis. It may … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Dialysis, Glomerulonephritis, Kidney Failure, Kidney-Related Health Questions, Nephrotic Syndrome | Comments Off on My dad is 79 years old and is #11 in the world with Anti-LRP2. He is at SLUH. Going down very quickly. He is on dialysis. Is there anyway they can bypass the kidneys completely to keep the proteins in his blood vessels and out of his body?

My brother has nephrotic syndrome and has developed nephritis. As far as I can see his medications are not working anymore. Any recommendations? Would love to hear from you.

In most cases, a kidney biopsy will be necessary in order to establish a specific diagnosis as to the cause of your brother’s nephritis. Once you have a specific diagnosis, then treatment can be recommended.  

Posted in Acute Kidney Injury, Ask the Doctor, Chronic Kidney Disease, Kidney Biopsy, Kidney-Related Health Questions, Nephrotic Syndrome | Comments Off on My brother has nephrotic syndrome and has developed nephritis. As far as I can see his medications are not working anymore. Any recommendations? Would love to hear from you.

I am nephrotic syndrome patient since 2003 and I am facing problem in running or walking style. Like I have an unusual style. Also I am worried about my bone health. Is there any problem with my kidney regarding bones health?

Yes. As part of the Nephrotic Syndrome, your kidney loses Vitamin D binding protein and other important proteins that are critical to bone health. Hence, part of treating the nephrotic syndrome is to monitor bone health, replace Vitamin D and … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Nephrotic Syndrome | Comments Off on I am nephrotic syndrome patient since 2003 and I am facing problem in running or walking style. Like I have an unusual style. Also I am worried about my bone health. Is there any problem with my kidney regarding bones health?