Category Archives: Polycystic Kidney Disease

The criteria for determining CKD is very confusing to me. As you know, the Merck Manual lists 5 stages of CKD. From reading some of your past posts it appears that you consider eGFR 60 or above to be normal. I have read that one of the following must be present for > or = three months to be CKD: GFR 29, or other markers of kidney damage. According to this criteria, it appears to me that stages 1 & 2 of CKD as defined in the Merck Manuel are completely ignored. Please explain.The other question I have is that the National Kidney Foundation website states that 37, 000, 000 adults have CKD in the US. There is no explanation as to what that number includes. That seems to be a lot of people to be in stages 3,4, & 5 so does that number include stages 1 & 2?

There are 5 Stages of chronic kidney disease (CKD) that have been proposed by the National Kidney Foundation (NKF). The estimating equation that we use to calculate the estimated glomerular filtration rate (eGFR) is most accurate and consistent when the … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, GFR, Kidney Biopsy, Kidney-Related Health Questions, Polycystic Kidney Disease

I have Polycystic Kidney Disease, and I have multiple cysts on each kidney that range from 3cm to 5.5cm in size. To what point or size do my kidneys/cysts have to get to before I can have them surgically treated? I want to be proactive in preventing damage done to my kidneys, and the cysts that are on them are large. Hope all is well,

In general, it is recommended that surgical procedures be avoided in all patients with polycystic kidney disease (PCKD). There are some exceptions for severe painful disease and in some cases prior to transplantation.  Otherwise, you should generally avoid any injury … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Cysts, Kidney-Related Health Questions, Polycystic Kidney Disease

I had ADPKD with lots of back and pain issues. I have 2 questions 1. Is there any reason to avoid using an epsom salt float tank? My neph says it will be fine but I don’t think he really thought about it and dismissed it as a silly question. I am stable at stage 3 CKD, 62 yrs old. 2. I have a baseball cyst in each kidney that are very painful. I also deal with abdominal crowding from PKD and a short stature. There is a good surgeon w a great outcome rate who wants to laparoscopy reroof both large cysts as well as 50 smaller cysts in each kidney. Another nephrologist is suggesting needle aspiration followed by alcohol to scar the interior of the cyst. I do not have any objective physician who can discuss the pros and cons of each option. What is your opinion.

I do not know of any benefits of using an Epsom Salt float tank but I also do not think there would be any ill effects in regards to kidney function.  I have been in practice for almost 40 years … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Cysts, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease

My wife is 31 years old. Diagnosed PKD 3 yrs back. Now the largest cyst size is 30 mm. Please suggest to reduce her cyst size. Help me by your valuable information. PS: her father died at age 59 due to adult PKD. Her grandmother also had the same problem expired at 65. I want my wife and daughter to live longer. Help me please.

First of all, patients with polycystic kidney disease (PCKD) will benefit from drinking plenty of plain water.  Your wife should avoid caffeine and caffeine containing drinks.  Caffeine can cause more rapid growth of kidney cysts. There is a new drug … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease

I am a 49 year old female with ADPKD…it has taken the lives of 3 generations around the ages of 72. A month ago my bloodwork showed a sharp decline in function… GFR at 17… stage 4 almost 5. I am single without insurance and am in dire need of a nephrologist and a dietician. I’m going through a local nonprofit here in Wilmington North Carolina that facilitates people with no insurance and getting appointments with a specialist but of course you can imagine the fear I have of not having a plan in place. What do you suggest that I do? Are there any clinical trials that you would be aware of or any type of immediate things that I need to prioritize first to take care of it especially if my process takes a while to get in with a nephrologist? Thank you so much, sir.

Autosomal Dominant Polycystic Kidney Disease (ADPKD) is generally a slowly progressive disease that progresses to end stage disease.  Since you have not had prior monitoring, it is difficult to tell if your kidney disease is slowly progressive or if there … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, GFR, Insurance & Medicare Coverage, Kidney-Related Health Questions, Laboratory Testing, Nephrologist, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Hello, I am a transgender individual and I was wondering if it is safe for someone with kidney disease to take testosterone. I have PKD and was wanting to go on T but I have found no resources online that said whether or not it was safe. If you do not know the answer can you possibly help me find someone who might?

Testosterone will likely increase your muscle mass and this will cause an elevation in your serum creatinine.  I am not aware of any studies that would offer insight into the use of testosterone in patients with chronic kidney disease (CKD) … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Is it normal to have kidney pain at stage 3 with Polycystic Kidney Disease? Should I be starting a diet for PKD at stage 3?

Patients with polycystic kidney disease (PCKD) often have pain associated with large cysts in their kidneys. The Stage of kidney disease is not a factor in the size of kidney cysts with PCKD. These cysts may have pain associated with … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Polycystic Kidney Disease

My father has Polycystic kidney disease and I don’t. But does that make me a carrier of this disease, thereby putting my children at risk of developing it?

No.  If you do not have autosomal dominant polycystic kidney disease (PCKD) then you do not carry the gene and cannot pass it to your children.  Fifty percent of your father’s children could be expected to inherit the gene and … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Dear Doctor, I was diagnosed with polycystic kidneys at the age of 18 but I’m not sure if I know what type of polycystic kidneys I have been diagnosed with. I can confirm that no one in my family has had this before. I had my son when I was 32 without any difficulty. Now I’m 37 and I would like to know: 1. What type of polycystic kidneys do I have? I have checked my medical reports they all say PKD. 2. What are the chances that my son will have normal kidneys vs polycystic kidneys? Currently my left kidney is 21.0×10.0 cm in size and right is 16.8×8.0 cm in size and my liver functions are normal. Serum creatine (enzymatic) Result is 0.73 mg/dl Flag reference value is 0.5-0.9. estimated GFR Result is >90 ml/min/1.73m^2. 3. Blood pressure goes up and down, pain at the back of my head and my feet swells. It hurts a lot on my heels, is this normal? 4. Is lemon in water good for me? 5. How can I reduce my belly fat as I’m been asked not to go to the gym? I walk 20 min a day in the morning. 6. In the long run, what do I have to look/plan for? I’m not happy doing transplantation and dialysis due to personal reasons and also this is so expensive for me too.. Appreciate your advice on this. Look forward to hearing from you. Thanking you in advance.

Polycystic kidney disease (PCKD) is an autosomal dominant adult type of kidney disease and is generally separated into two types. Type 1 is usually younger in onset (usually before age 30) and progresses to kidney failure usually in the 4th … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney Failure, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease

Will forskolin for weight loss hurt my kidneys? My doctor says I’m in the early stage 3 kidney disease.

Forskolin is an herbal product that has been described as having a number of healing properties. I am unable to find any studies that have been done on patients with chronic kidney disease. If you have polycystic kidney disease, you … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Herbal Supplements in Kidney Disease/Failure, Kidney-Related Health Questions, Polycystic Kidney Disease