Category Archives: Polycystic Kidney Disease

I was diagnosed with polycystic kidney disease two years ago. I changed a recommended kidney health diet and light excercise. Lately I have been having pain in my kidneys and adrenal glands along with low energy levels. I have not had a check up since I was diagnosed. What should I do?

Patients with polycystic kidney disease (PCKD) may often experience pain and discomfort from time to time related to cyst growth and cyst hemorrhage. You should avoid wearing tight fitting clothing. You should avoid all forms of caffeine. Light exercise and … Continue reading

Posted in Ask the Doctor, Diet/Nutrition, Exercise, Kidney-Related Health Questions, Polycystic Kidney Disease

I was diagnosed with Stage 3 PKD at age 72 with creatinine 1.61 and GFR 42. 14 months later I am at 1.7 and 40. My blood pressure is controlled with 10 mg of lisinopril. My sister was diagnosed with Stage 3 at age 63 and went on dialysis at age 76. Is there any evidence that the disease might follow a similar course in siblings in terms of years to dialysis? Thanks very much for your help.

It is generally thought that Autosomal Dominant Adult Type Polycystic Kidney Disease (PCKD) progresses at about the same rate in any given family.  We recognize two types of PCKD, Type 1 which is younger onset and type 2, which is … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Dialysis, GFR, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease

My husband has PKD. He recently started to feel aching in his ‘guts’. His side is hurting and is running a fever. His doctor said his potassium is very high and he is taking a five day medication to bring it down. Is it possible that a cyst has ruptured? If so, is that harmful to him?

Polycystic kidney disease (PCKD) can be associated with abdominal pain from a cyst rupture, however, this should also cause blood in the urine (hematuria).  The hematuria may only be visible on a dipstick or under the microscope.  I suggest that … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease

I have a family history of Polycystic kidney disorder seen only in males in my father’s side. I am the only daughter to my parents. I had taken a dip test as part of tests for checking my kidney function. Dip test showed microscopic particles of blood in my urine along with a high amount of protein. I have not yet received the results for other tests. Does this indicate anything?

Blood in the urine (hematuria) and protein in the urine (proteinuria) can certainly be seen in patients with polycystic kidney disease (PCKD), however, both hematuria and proteinuria are seen in many other diseases of the kidney and urinary tract.  I … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I will be having my first colonoscopy (routine) in a few weeks. I have polycystic kidney disease with no issues at this time. In 2009 I had a cancerous cyst removed near my right kidney and the doctor removed my adrenal gland. The surgery was successful as the cancer was contained in the cyst. I have given the doctor information on my medical history and they recommend my prep be Suprep. My spouse had a colonoscopy a few years ago and he had Prepopik which he said was very tolerable. Unless there is a medical reason I would like to have the prep Prepopik. The lady at the front desk said the doctor would decide what is best for me but I did not like her approach. I have not spoken with a doctor or nurse at this facility. Is there a reason for me not to have the Prepopik. I am thinking of canceling my colonoscopy.

In general, if your estimated glomerular filtration rate (eGFR) is normal, most colonoscopy preparations are safe to take.  Both Prepopik and Suprep contain magnesium, which is not recommended if you have an eGFR of less than 30 milliliters per minute … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Medication and Kidney Disease, Medication and Kidney Function, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I am male and 50 years old. I am diagnosed with polycystic kidney disease. How can you help me?

I can suggest that you visit our web site to learn about autosomal dominant polycystic kidney disease (ADPCKD).  You can access our web site at: https://www.kidney.org/atoz/content/polycystic You can also learn about ADPCKD at the Polycystic Kidney Disease Foundation at their web … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Is there any treatment availiable for Polycystic kidney disease in stage 3 or 4? Is there any medical way to reduce cysts?

There are currently no known treatments that reduce the size of kidney cysts in patients with polycystic kidney disease.  There are drugs that are being tested to slow the rate of growth of kidney cysts, however, none of them have … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease, Treatments

Hi Dr. I was recently diagnosed with stage 3 kidney disease. My mother had it as well 20 or so years ago. She did in time end up on dialysis. With this being genetic, will I also end up on dialysis? Is that the normal path of the inherited disease?

There are many different kidney diseases that can be inherited including polycystic kidney disease, Alport’s syndrome, diabetes, and other forms of glomerulonephritis.  I am unable to make a specific diagnosis based on the information that you present.  I suggest that … Continue reading

Posted in Alport Syndrome, Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diabetes, Glomerulonephritis, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Hello! I am currently undergoing hemodialysis due to ESRD secondary to Polycystic Kidney Disease, and I have been diagnosed as having an infection which is MRSA. I’m receiving antibiotics via an IV line in my right forearm. My left arm has my A/V fistula which is about 2 1/4 yrs post op for creating the fistula. Since having the surgery, I have constantly been told to not let anyone use my left alarm for routine blood draw or to have my BP taken. Today, the Infectious Disease doctors informed me that the Vancomycin will be given after dialysis, or during the last hour, using the fistula as the access port for the medicine. I am very concerned that the medicine, Vancomycin, will negatively affect my fistula which I was told to guard as if it were a pile of gold. So, I hope you can help me, as I really do not want anything going thru my fistula, especially an antibiotic which I was told is pretty nasty stuff. Do you know of any studies or anything that has been written in reference to Vancomycin via A/V fistula for MRSA treatment? I have tried, unsuccessfully, to find anything written about the use of the fistula for antibiotic therapy.

Vancomycin is the most common antibiotic to be used to treat methicillin resistant Staph Aureus (MRSA).  It is an antibiotic that can be given through your dialysis needles at the end of dialysis so that it does not require another … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Dialysis, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Treatments

Is taking BCAA has an effect on cyst size ( increase or enlarge cysts ) and will it affect the kidney functionality. Note that I am an athlete/bodybuilder with good shape and normal blood pressure and have resting bpm between 40 and 45.

I do not have any information that branched chain amino acids (BCAA) has any effect on cyst size in patients with polycystic kidney disease (PCKD).  I do not know of any research that shows any effect of BCAA on kidney … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments