Category Archives: Polycystic Kidney Disease

I just received my MRI results for my lower back. Included in the report a notation about cortical cysts on right kidney. I have had fatigue, raised blood pressure, currently on medication for diabetes and other related symptoms to PKD. I am the daughter of a positive hep c paternal father who infected my mother and carried to fetus. I have never been tested. I have had two surgeries to remove bladder cysts, they were benign but I was still given an interferon wash internally. In a previous sonogram I learned that I had an enlarged liver. Dr. did not seem alarmed at that time. I do not know where to begin first. I am very scared and lost.

I am unable to provide a specific diagnosis based on the information that you provide.  I suggest that you contact your primary care physician (PCP).  When there are a number of issues to deal with, I find it best to … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease, Diabetes, Laboratory Testing, Treatments

I have PKD, end stage, and I have been waking up with puffy eyes for at least 2 months and now my face and neck are swollen so bad that my chin is not definable. Is this because of the kidney disease or because I haven’t had dialysis in over a month?

I suspect that your swelling is due to both your chronic kidney disease (CKD) related to your Polycystic Kidney Disease (PCKD) and the lack of dialysis.  I suggest that you contact your nephrologist for proper care. For more information on … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Dialysis, Kidney-Related Health Questions, Laboratory Testing, Nephrologist, Polycystic Kidney Disease, Treatments

My dearest friend has PKD and suffering with a migraine. We have no pain reliever and no money. Is there anything I can do to help relieve her pain? Please, I have been to several free sites that are not free I can’t buy her a Tylenol much less pay for advice.

I am not an expert in treatment of migraine headache syndrome.  Resting in a dark quiet room has been advocated by some.  I do not know of any other non-medicinal treatments.  Tylenol (generic acetaminophen) is safe for patients with polycystic … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease, Treatments

Dr. Spry. My wife had a child with her previous husband that was born with PKD and died a year later. She had another daughter with him that is 28 years old now and we had a son together who is now 19 years old. My question is what is the best way to find out if my step daughter and my son are at risk for developing PKD. My assumption is that we should get my wife tested to see if she is a carrier. However without any medical insurance I am afraid that genetic testing would be impossible due to lack of financial means. Thank you so much for taking the time to help those in need.

There are two possibilities.  This could be either autosomal recessive Polycystic Kidney Disease, (ARPCKD) or this could be early onset of autosomal dominant Polycystic Kidney Disease (ADPCKD).  If this is ARPCKD, the only way to really tell is for your … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease

My husband is 61 and has PKD. What causes his potassium to keep dropping?

In most instances, a low serum potassium is either inadequate intake of potassium or he is taking a medication that is causing the kidneys to waste potassium.  Diuretics and laxatives can cause low potassium.  Polycystic kidney disease (PCKD) is not … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease

How serious are polycystic kidneys and how can it be treated?

Polycystic kidney disease (PCKD) is the most common genetic kidney disease.  You can review PCKD on our web site at:  https://www.kidney.org/atoz/content/polycystic You can also visit the web site for the PCKD Foundation at:  http://www.pkdcure.org

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease

I am suffering with PKD and my blood phosphorus and creatinine levels are high. My nephrologist give me following medicines: 1) sodium bicarbonate 1000mg thrice, 2) Prazopress 5 mg once daily, Vitamin D3 once along with Acutrol C 400 thrice but I am having body pains and feverishness all the time along with acidity. Please suggest me medicine to feel better.

I am unable to provide a specific diagnosis based on the information that you present.  The symptoms that you describe are common to many illnesses and may indicate an infection.  I suggest you consult your primary care physician and have … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease, Serum Creatinine

Good day! I found your site on the internet today which is primarily concerned about kidney diseases, and I thank God He brought me here. My mom is currently experiencing recurrent mild pain on her flank (left part of her tummy). She has a polycystic kidney disease. We just came home from the hospital because we rushed her after her blood pressure rose and experienced chest pain last week. The doctor changed her maintenance meds for her blood pressure and some meds to alleviate the pain in her chest. Right now it’s all normal, except that she feels mild pain sometimes on the epigastric area and sometimes on the left side of her stomach (below her ribs). She has undergone ultrasound, and according to the result, the largest cyst she has is about 6cm size on her left kidney. The are also cysts on other parts of her kidney, liver and spleen but the doctor said they were simple ones. Her lab results for kidney fxn were normal except that uric acid a little bit high (ex. Normal value is 1.20, hers is 1.23) from the normal value. What might be a good explanation for her having such sudden pain? Thank you in advance and I am hoping for an immediate response. God bless!

Polycystic kidney disease (PCKD) is often associated with pain in the abdomen and flank from the enlarging cysts.  Pain can be brought on by bleeding into the cysts which may cause blood to appear in her urine.  I am unable … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Laboratory Testing, Nephrologist, Polycystic Kidney Disease, Treatments

My brother has just found out he has PKD. I’m not completely sure to all the details or to what type he has yet. He doesn’t have insurance so I’m wondering how we can go about treatments and what we need to do. Thank you.

I suggest that you review our web site for information about Polycystic Kidney Disease (PCKD) at:  https://www.kidney.org/atoz/content/polycystic I also suggest reviewing the PCKD Foundation web site at: https://pkdcure.org/  

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease

I have PKD. I am 59 yrs old and GFR is 21. I suffer from bad pressure headaches. I live in AZ and work outside and also coach baseball. I have been prescribed one 75mg indomethacin daily. My nephrologist is not happy but he says it is about quality of life and if indomethacin can get through the day without pain then it is OK to take. I have found if I take twice a day 600mg of Aleve, it works the same as the indomethacin. My question is which would be better for me and my kidneys?

Both drugs have similar and equally bad effects on your kidney function.  The two drugs are both non-steroidal anti-inflammatory drugs (NSAID’s) and work by the same mechanism to reduce kidney function.  The indomethacin has a longer and stronger duration of … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, GFR, Kidney-Related Health Questions, Medication and Kidney Disease, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments