Category Archives: Polycystic Kidney Disease

I have a question about deceased donor kidney transplants from 2003. Do they generally last 10-15 years on average or longer? Does one generally die with a functioning transplant? Also, if I have a family history of kidney disease should I be checked again? When I was younger it was said that I did not have it, I assume that’s still the case, but my mom had it, and recently passed away from complications from immune system issues. It’s called PKD.

According to statistics published by the United Network for Organ Sharing (https://unos.org/), the expected half life for cadaveric organ transplants in 2003 would have been in the range of 8 to 9 years. This means that on average, one half … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease, Transplantation

I have Polycystic CKD with a GFR 42 – 46, BUN 27, Creatnine 1.7. I need to have a cardiac CTA with contrast in preparation for an A-Fib ablation. Could you help me understand the risks of CTA contrast? Thanks very much!

The use of iodinated contrast for computerized tomography (CT) scanning is a risk for patients with underlying chronic kidney disease (CKD). The risk is that patients will suffer acute kidney injury as a result of filtering the contrast through their … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diabetes, Diet/Nutrition, Kidney-Related Health Questions, Polycystic Kidney Disease

Hello! Would you be able to provide information about some concerns I have for my cousin? She is 54 y.o. and sadly, it appears that her body may have started the end-of-life process. While I don’t know all the exact details, because she has a history of not telling the truth, this is what I know, about 6 yrs ago, she was diagnosed with very advanced of the more serious strain of PKD on both kidneys. Prior to that she went thru 2 open brain surgeries because of aneurysms, which no one said it was linked to PKD. She quickly deteriorated and was put on dialysis. She insisted on Peritoneal because she wanted to do it at home. From the beginning, she didn’t take her illness seriously and continued to eat her regular unhealthy diet, lying to everyone that it didn’t matter. I started to do research about PKD and by asking questions, figured out that it comes from my side of the family. Her mom (72) and her sister (60) both have cysts in their kidneys & liver, but both are in denial, although it has developed as bad as my sister’s. She has 4 adult children and I suggested to them a couple of years ago to get tested, because I read they have a 50/50 of having it. One of her daughters was just diagnosed, the others refuse. I had an ultrasound last year and was negative. My only surviving brother doesn’t want to know. But I digressed sorry. Her kidneys got so large and started getting infected, that she went thru a bilateral nephrectomy to make her feel better. Her doctors told her she had to make changes because she would get more sick, even with PD. She has never been compliant and she was taken off transplant list, which I totally understand because she wouldn’t take care of a new kidney, so doesn’t deserve it. In my opinion she doesn’t want to live any more, but may be afraid of accepting. She has had multiple hospitalizations in the past 24 months, doesn’t eat any more, very frail, no energy, feeling uncomfortable all the time. Last month she went thru parathyroid hyperplasia and thought she wouldn’t make it, but she did. Which brings me to my question, is now too late to even force her to have a transplant so she can live? As I type this, I realize I already know the answer. In your opinion, what can the family do? I’m assuming she doesn’t have much time left. Maybe I just need to mind my own business and let God do his thing! Apologies for my rambling, and thank you for your time.

One of the prime tenets of medical ethics is that a patient is autonomous to make decisions for themselves as long as they are competent. As long as your sister is competent to make decisions, all the decisions that she … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, End of Life Issues, Kidney-Related Health Questions, Polycystic Kidney Disease

I was diagnosed with polycystic kidney disease two years ago. I changed a recommended kidney health diet and light excercise. Lately I have been having pain in my kidneys and adrenal glands along with low energy levels. I have not had a check up since I was diagnosed. What should I do?

Patients with polycystic kidney disease (PCKD) may often experience pain and discomfort from time to time related to cyst growth and cyst hemorrhage. You should avoid wearing tight fitting clothing. You should avoid all forms of caffeine. Light exercise and … Continue reading

Posted in Ask the Doctor, Diet/Nutrition, Exercise, Kidney-Related Health Questions, Polycystic Kidney Disease

I was diagnosed with Stage 3 PKD at age 72 with creatinine 1.61 and GFR 42. 14 months later I am at 1.7 and 40. My blood pressure is controlled with 10 mg of lisinopril. My sister was diagnosed with Stage 3 at age 63 and went on dialysis at age 76. Is there any evidence that the disease might follow a similar course in siblings in terms of years to dialysis? Thanks very much for your help.

It is generally thought that Autosomal Dominant Adult Type Polycystic Kidney Disease (PCKD) progresses at about the same rate in any given family.  We recognize two types of PCKD, Type 1 which is younger onset and type 2, which is … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Dialysis, GFR, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease

My husband has PKD. He recently started to feel aching in his ‘guts’. His side is hurting and is running a fever. His doctor said his potassium is very high and he is taking a five day medication to bring it down. Is it possible that a cyst has ruptured? If so, is that harmful to him?

Polycystic kidney disease (PCKD) can be associated with abdominal pain from a cyst rupture, however, this should also cause blood in the urine (hematuria).  The hematuria may only be visible on a dipstick or under the microscope.  I suggest that … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease

I have a family history of Polycystic kidney disorder seen only in males in my father’s side. I am the only daughter to my parents. I had taken a dip test as part of tests for checking my kidney function. Dip test showed microscopic particles of blood in my urine along with a high amount of protein. I have not yet received the results for other tests. Does this indicate anything?

Blood in the urine (hematuria) and protein in the urine (proteinuria) can certainly be seen in patients with polycystic kidney disease (PCKD), however, both hematuria and proteinuria are seen in many other diseases of the kidney and urinary tract.  I … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I will be having my first colonoscopy (routine) in a few weeks. I have polycystic kidney disease with no issues at this time. In 2009 I had a cancerous cyst removed near my right kidney and the doctor removed my adrenal gland. The surgery was successful as the cancer was contained in the cyst. I have given the doctor information on my medical history and they recommend my prep be Suprep. My spouse had a colonoscopy a few years ago and he had Prepopik which he said was very tolerable. Unless there is a medical reason I would like to have the prep Prepopik. The lady at the front desk said the doctor would decide what is best for me but I did not like her approach. I have not spoken with a doctor or nurse at this facility. Is there a reason for me not to have the Prepopik. I am thinking of canceling my colonoscopy.

In general, if your estimated glomerular filtration rate (eGFR) is normal, most colonoscopy preparations are safe to take.  Both Prepopik and Suprep contain magnesium, which is not recommended if you have an eGFR of less than 30 milliliters per minute … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Medication and Kidney Disease, Medication and Kidney Function, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I am male and 50 years old. I am diagnosed with polycystic kidney disease. How can you help me?

I can suggest that you visit our web site to learn about autosomal dominant polycystic kidney disease (ADPCKD).  You can access our web site at: https://www.kidney.org/atoz/content/polycystic You can also learn about ADPCKD at the Polycystic Kidney Disease Foundation at their web … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Is there any treatment availiable for Polycystic kidney disease in stage 3 or 4? Is there any medical way to reduce cysts?

There are currently no known treatments that reduce the size of kidney cysts in patients with polycystic kidney disease.  There are drugs that are being tested to slow the rate of growth of kidney cysts, however, none of them have … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease, Treatments