Category Archives: Polycystic Kidney Disease

Dear Doctor, I was diagnosed with polycystic kidneys at the age of 18 but I’m not sure if I know what type of polycystic kidneys I have been diagnosed with. I can confirm that no one in my family has had this before. I had my son when I was 32 without any difficulty. Now I’m 37 and I would like to know: 1. What type of polycystic kidneys do I have? I have checked my medical reports they all say PKD. 2. What are the chances that my son will have normal kidneys vs polycystic kidneys? Currently my left kidney is 21.0×10.0 cm in size and right is 16.8×8.0 cm in size and my liver functions are normal. Serum creatine (enzymatic) Result is 0.73 mg/dl Flag reference value is 0.5-0.9. estimated GFR Result is >90 ml/min/1.73m^2. 3. Blood pressure goes up and down, pain at the back of my head and my feet swells. It hurts a lot on my heels, is this normal? 4. Is lemon in water good for me? 5. How can I reduce my belly fat as I’m been asked not to go to the gym? I walk 20 min a day in the morning. 6. In the long run, what do I have to look/plan for? I’m not happy doing transplantation and dialysis due to personal reasons and also this is so expensive for me too.. Appreciate your advice on this. Look forward to hearing from you. Thanking you in advance.

Polycystic kidney disease (PCKD) is an autosomal dominant adult type of kidney disease and is generally separated into two types. Type 1 is usually younger in onset (usually before age 30) and progresses to kidney failure usually in the 4th … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney Failure, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease

Will forskolin for weight loss hurt my kidneys? My doctor says I’m in the early stage 3 kidney disease.

Forskolin is an herbal product that has been described as having a number of healing properties. I am unable to find any studies that have been done on patients with chronic kidney disease. If you have polycystic kidney disease, you … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Herbal Supplements in Kidney Disease/Failure, Kidney-Related Health Questions, Polycystic Kidney Disease

Hello, I have a question about the CLA. What might be the side effects of the CLA used for weight loss if a person has PKD? Would that affect the cysts growth, or would it be a more burden on the kidney? And is it safe to be taken for an athlete person with a PKD knowing that the blood results are normal?

I am not familiar with the acronym “CLA” but a Google search of this term reveals this may be “Conjugated Linoleic Acids”. These are fatty acids.  I will assume this is the case. I can find no evidence that CLA … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Polycystic Kidney Disease

1.) When (age 20 in 1999) I was 4 months pregnant with my oldest son I found out that I had polycystic kidneys. It was 2 months after I gave birth that I had a right nephrectomy. The urologist said it had so many cysts that it looked like a bag of grapes and my left kidney had a few cysts, function was good, but is large enough to be in a man that was over 6 foot. I am only 4’10”. Since then my paternal grandfather has had a right nephrectomy and left is good. My father was diagnosed 5 years ago with bilateral polycystic kindeys and is stage 4 renal failure and not yet on dialysis. Is this just a coincidence or do I need to have my son tested as he is now 19 years old? How often should I check up on my own kidney issues? I have not seen anyone in 15 years but have had very little problems other than occasional UTI. 2.) I have also recently been diagnosed with DMII and arthritis. I am terrified to take anything for the pain and inflammation of the arthritis. I control the diabetes with balanced diet. Thank you so much.

I recommend annual visits to your doctor (PCP) for follow up of your polycystic kidney disease (PCKD). You should have both blood and urine testing to monitor your status and also have your diabetes monitored. PCKD is a silent disease … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diabetes, Hypertension/High Blood Pressure, Kidney-Related Health Questions, Polycystic Kidney Disease

Hello doctor. I had to terminate my 19 weeks fetus as he was having multicystic kidney dysplasia. The case happened in September 2018. I wanted to know will the problem repeat in my next pregnancies?

This is a difficult question to answer, because it depends on the degree to which a specific diagnosis was made. Multicystic Dysplastic Kidney Disease (MCDKD) is a complex disorder that can sometimes be confused with Autosomal Recessive Polycystic Kidney Disease … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease, Pregnancy / Kids

What is the possibility of help for my Mom? She has PKD and her kidneys have catalyzed, which means they are not filtering anymore. She is only 53 years old and currently is in the hospital. She is right now using fluids to hopefully flush out and bring her creatinine level lower from a 13 and lower her blood pressure which has been almost 200. My grandmother, her Mom, died after 10 years of being on dialysis and my Mom’s sister has just started at age 52, 4 years ago. And kidney transplant, I believe, is the answer vs years of dialysis treatments.

I am unable to offer treatment suggestions without performing a complete history and physical examination. I suggest that you continue to consult with the physicians and the nephrologist, who are currently caring for your mother. I would agree with you … Continue reading

Posted in Ask the Doctor, Kidney Failure, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease, Transplantation

Hello doctor! I am 24 years old and I have several kidney cysts in both kidneys. I did a CT scan and an MRI for other reasons and I found out I had several small cysts on both of them. I don’t have any symptoms and I don’t have anyone in my family with a kidney disease that I know of. Am really worried. Is it normal to have several cysts at my age? Answering my questions would be a big help. Thank you very much!

At age 24, you should have less than three cysts on your kidneys. If there are more than three cysts and the cysts are simple cysts, then you may have polycystic kidney disease. I suggest that you discuss this with … Continue reading

Posted in Ask the Doctor, Kidney Cysts, Kidney-Related Health Questions, Polycystic Kidney Disease

I was told I have polycystic kidney disease a few years ago. It doesn’t bother me much. What is polycystic kidneys and what kind of treatment can I do to help improve my kidney function?

Polycystic kidney disease (PCKD) is an autosomal dominant and hereditary kidney disease. It is the most common hereditary kidney disease. You can learn more about PCKD at our web site by going to: https://www.kidney.org/atoz/content/polycystic You can also learn about PCKD at … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease

Good day Doctor. I was diagnosed of adult polycystic kidney disease. Now my lab test result shows my creatinine level is 1,195. Since I am feeling hiccups, tiredness, and immerturia. Please, what can I do to bring the creatinine level down? Thank you.

The information that you present suggests that you have very advanced chronic kidney disease (CKD) related to your polycystic kidney disease (PCKD). I suggest that you visit with a nephrologist in your country. There is not a treatment for PCKD … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Dialysis, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease, Transplantation

PKD has impacted my family for many generations. As time goes on the disease continues to appear in family members but at an older age. Even in the last 100 years family members seem to experience renal failure 20 years later over that span of time (40 versus the current 60). Has a link for this been found by researchers? Thank you.

I am not aware of any consistent data that has looked at this in a long term series of families known to have Polycystic Kidney Disease (PCKD). I would guess that better control of high blood pressure and avoidance of … Continue reading

Posted in Ask the Doctor, Hypertension/High Blood Pressure, Kidney-Related Health Questions, Medication and Kidney Disease, Polycystic Kidney Disease