Category Archives: Polycystic Kidney Disease

Can kidney cysts cause me to develop polycythemia vera? I also use a CPAP machine because of obstructive apnea. Cpap helps greatly but still making too many red blood cells.

Cystic disease of the kidneys, such as polycystic kidney disease can be associated with polycythemia and increased numbers of red blood cells. Sleep apnea is also associated with polycythemia. If you only have one or two simple cysts, this would … Continue reading

Posted in Ask the Doctor, Kidney Cysts, Kidney-Related Health Questions, Polycystic Kidney Disease

I have PKD in my family (my grandma who passed away, mother who is 56, and other family members) and I am 32 years old. I had my first Ultrasound a few years ago and my latest one last year showed “2 small cysts” and it was also discovered that I only have one kidney. I am seeing a nephrologist in Boca Raton and he has recommended that I get genetic testing done to find out if I have the gene or not since nothing says I have PKD at this point so we want to be sure one way or another. I have reached out to some genetic counseling centers but they are all very busy and I couldn’t get an appointment until June 2020. Is there anything that you can recommend or any specific place I can go for my unique circumstance? Thanks for your help.

Your ultrasound does not achieve criteria for a diagnosis of autosomal dominant polycystic kidney disease (ADPCKD).  The only other criteria that is used is time to see if you develop further cysts that would qualify for a diagnosis of ADPCKD. … Continue reading

Posted in Ask the Doctor, Kidney Cysts, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease

Is the cysts inside the kidneys, can cause kidney failure? In the future, how to take care of this problem and who should I see to follow up? I mean what speciality? Thanks

Cysts on the kidneys may occur as a result of a genetic kidney disease known as autosomal dominant polycystic kidney disease (ADPCKD).  There is also a condition known as acquired cystic disease of the kidney as well as simple cysts … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Cysts, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease, Urological Issues

BUN 28 mg/dL, Creatinine 1.51 mg/dL, and eGFR (non Afr Am) 51 mL/min/1.73 Should I be concerned? I have ADPKD and am 55 years old.

These findings, if they are repeated and still abnormal, would suggest that you have progressive kidney disease.  You should be followed by your physician and make sure you are on proper treatment for your autosomal dominant polycystic kidney disease (ADPKD). … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, GFR, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Serum Creatinine

I am contemplating being a kidney donor for my father who has polycystic kidney disease and am trying to find long-term data on health risks for a kidney donor. Most long-term data I have seen to date is very limited in nature and does not cover past 10-12 yrs. Are there any conclusive studies showing anticipated health risks for kidney donors? I am a 48 yr old male, caucasian, 5’9/165 lbs. Thank you for any resources you can point me toward. Regards.

This is difficult to answer for any specific individual. The most comprehensive document that I am aware of is the Kidney Disease: Improving Global Outcomes (KDIGO) Clinical Practice Guideline on the Evaluation and Care of Living Kidney Donors published in … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Donation, Hypertension/High Blood Pressure, Kidney Failure, Kidney-Related Health Questions, Living Donation, Nephrectomy / One kidney, organ donation, Polycystic Kidney Disease

I am a 53 year old woman with polycystic kidney disease. I weigh 115 lbs, my creatinine is 2.0 and my GFR is 28. I’ve had multiple hospitalizations for severe kidney infections and am on preventive antibiotics. Lately I have developed worsening fatigue, nausea, headaches, water retention, kidney pain, mental confusion, joint pain and my recent lab results showed my anion gap is the highest it’s ever been of 25. Is this a sign of metabolic acidosis? I asked my nephrologist if this means I might need dialysis or another form of treatment soon and he seemed like it was nothing, said it’s not time for it yet, my GFR is not low enough yet. How much worse do I need to get before I could benefit from dialysis and get on the transplant list? Is GFR the only indicator with PKD? I am afraid I will be so sick by then that I will not do well. Should I get another opinion. I can no longer work now and I just want to feel better. Thank you for your help.

An anion gap of 25 is a pretty high anion gap and suggests that you may have something other than kidney disease causing your symptoms.  In general, chronic kidney disease (CKD) from polycystic kidney disease (PCKD) causes a non-anion gap … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Dialysis, GFR, Kidney Cysts, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease, Serum Creatinine

The criteria for determining CKD is very confusing to me. As you know, the Merck Manual lists 5 stages of CKD. From reading some of your past posts it appears that you consider eGFR 60 or above to be normal. I have read that one of the following must be present for > or = three months to be CKD: GFR 29, or other markers of kidney damage. According to this criteria, it appears to me that stages 1 & 2 of CKD as defined in the Merck Manuel are completely ignored. Please explain.The other question I have is that the National Kidney Foundation website states that 37, 000, 000 adults have CKD in the US. There is no explanation as to what that number includes. That seems to be a lot of people to be in stages 3,4, & 5 so does that number include stages 1 & 2?

There are 5 Stages of chronic kidney disease (CKD) that have been proposed by the National Kidney Foundation (NKF). The estimating equation that we use to calculate the estimated glomerular filtration rate (eGFR) is most accurate and consistent when the … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, GFR, Kidney Biopsy, Kidney-Related Health Questions, Polycystic Kidney Disease

I have Polycystic Kidney Disease, and I have multiple cysts on each kidney that range from 3cm to 5.5cm in size. To what point or size do my kidneys/cysts have to get to before I can have them surgically treated? I want to be proactive in preventing damage done to my kidneys, and the cysts that are on them are large. Hope all is well,

In general, it is recommended that surgical procedures be avoided in all patients with polycystic kidney disease (PCKD). There are some exceptions for severe painful disease and in some cases prior to transplantation.  Otherwise, you should generally avoid any injury … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Cysts, Kidney-Related Health Questions, Polycystic Kidney Disease

I had ADPKD with lots of back and pain issues. I have 2 questions 1. Is there any reason to avoid using an epsom salt float tank? My neph says it will be fine but I don’t think he really thought about it and dismissed it as a silly question. I am stable at stage 3 CKD, 62 yrs old. 2. I have a baseball cyst in each kidney that are very painful. I also deal with abdominal crowding from PKD and a short stature. There is a good surgeon w a great outcome rate who wants to laparoscopy reroof both large cysts as well as 50 smaller cysts in each kidney. Another nephrologist is suggesting needle aspiration followed by alcohol to scar the interior of the cyst. I do not have any objective physician who can discuss the pros and cons of each option. What is your opinion.

I do not know of any benefits of using an Epsom Salt float tank but I also do not think there would be any ill effects in regards to kidney function.  I have been in practice for almost 40 years … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney Cysts, Kidney-Related Health Questions, Nephrologist, Polycystic Kidney Disease

My wife is 31 years old. Diagnosed PKD 3 yrs back. Now the largest cyst size is 30 mm. Please suggest to reduce her cyst size. Help me by your valuable information. PS: her father died at age 59 due to adult PKD. Her grandmother also had the same problem expired at 65. I want my wife and daughter to live longer. Help me please.

First of all, patients with polycystic kidney disease (PCKD) will benefit from drinking plenty of plain water.  Your wife should avoid caffeine and caffeine containing drinks.  Caffeine can cause more rapid growth of kidney cysts. There is a new drug … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease