Category Archives: Polycystic Kidney Disease

I have a family history of Polycystic kidney disorder seen only in males in my father’s side. I am the only daughter to my parents. I had taken a dip test as part of tests for checking my kidney function. Dip test showed microscopic particles of blood in my urine along with a high amount of protein. I have not yet received the results for other tests. Does this indicate anything?

Blood in the urine (hematuria) and protein in the urine (proteinuria) can certainly be seen in patients with polycystic kidney disease (PCKD), however, both hematuria and proteinuria are seen in many other diseases of the kidney and urinary tract.  I … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I will be having my first colonoscopy (routine) in a few weeks. I have polycystic kidney disease with no issues at this time. In 2009 I had a cancerous cyst removed near my right kidney and the doctor removed my adrenal gland. The surgery was successful as the cancer was contained in the cyst. I have given the doctor information on my medical history and they recommend my prep be Suprep. My spouse had a colonoscopy a few years ago and he had Prepopik which he said was very tolerable. Unless there is a medical reason I would like to have the prep Prepopik. The lady at the front desk said the doctor would decide what is best for me but I did not like her approach. I have not spoken with a doctor or nurse at this facility. Is there a reason for me not to have the Prepopik. I am thinking of canceling my colonoscopy.

In general, if your estimated glomerular filtration rate (eGFR) is normal, most colonoscopy preparations are safe to take.  Both Prepopik and Suprep contain magnesium, which is not recommended if you have an eGFR of less than 30 milliliters per minute … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Medication and Kidney Disease, Medication and Kidney Function, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I am male and 50 years old. I am diagnosed with polycystic kidney disease. How can you help me?

I can suggest that you visit our web site to learn about autosomal dominant polycystic kidney disease (ADPCKD).  You can access our web site at: https://www.kidney.org/atoz/content/polycystic You can also learn about ADPCKD at the Polycystic Kidney Disease Foundation at their web … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Is there any treatment availiable for Polycystic kidney disease in stage 3 or 4? Is there any medical way to reduce cysts?

There are currently no known treatments that reduce the size of kidney cysts in patients with polycystic kidney disease.  There are drugs that are being tested to slow the rate of growth of kidney cysts, however, none of them have … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Kidney-Related Health Questions, Polycystic Kidney Disease, Treatments

Hi Dr. I was recently diagnosed with stage 3 kidney disease. My mother had it as well 20 or so years ago. She did in time end up on dialysis. With this being genetic, will I also end up on dialysis? Is that the normal path of the inherited disease?

There are many different kidney diseases that can be inherited including polycystic kidney disease, Alport’s syndrome, diabetes, and other forms of glomerulonephritis.  I am unable to make a specific diagnosis based on the information that you present.  I suggest that … Continue reading

Posted in Alport Syndrome, Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diabetes, Glomerulonephritis, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Hello! I am currently undergoing hemodialysis due to ESRD secondary to Polycystic Kidney Disease, and I have been diagnosed as having an infection which is MRSA. I’m receiving antibiotics via an IV line in my right forearm. My left arm has my A/V fistula which is about 2 1/4 yrs post op for creating the fistula. Since having the surgery, I have constantly been told to not let anyone use my left alarm for routine blood draw or to have my BP taken. Today, the Infectious Disease doctors informed me that the Vancomycin will be given after dialysis, or during the last hour, using the fistula as the access port for the medicine. I am very concerned that the medicine, Vancomycin, will negatively affect my fistula which I was told to guard as if it were a pile of gold. So, I hope you can help me, as I really do not want anything going thru my fistula, especially an antibiotic which I was told is pretty nasty stuff. Do you know of any studies or anything that has been written in reference to Vancomycin via A/V fistula for MRSA treatment? I have tried, unsuccessfully, to find anything written about the use of the fistula for antibiotic therapy.

Vancomycin is the most common antibiotic to be used to treat methicillin resistant Staph Aureus (MRSA).  It is an antibiotic that can be given through your dialysis needles at the end of dialysis so that it does not require another … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Dialysis, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Treatments

Is taking BCAA has an effect on cyst size ( increase or enlarge cysts ) and will it affect the kidney functionality. Note that I am an athlete/bodybuilder with good shape and normal blood pressure and have resting bpm between 40 and 45.

I do not have any information that branched chain amino acids (BCAA) has any effect on cyst size in patients with polycystic kidney disease (PCKD).  I do not know of any research that shows any effect of BCAA on kidney … Continue reading

Posted in Ask the Doctor, Kidney-Related Health Questions, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

Hello, as it is known in the last studies that caffeine is the only proven agent to increase the cyst size in the kidneys. Is that true, and what about the protein and the glutamine will they affect the cyst ?

There is research that shows that caffeinated beverages such as soda pop and coffee may increase cyst size and increase pain in patients with polycystic kidney disease (PCKD).  I advise patients with PCKD to avoid caffeinated beverages.  I am not … Continue reading

Posted in Ask the Doctor, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Polycystic Kidney Disease, Symptoms and Side Effects, Treatments

I am a 64 year old female and am in early moderate state PKD and because of my research on the internet I am confused as to what to eat as I see websites with conflicting information. I mentioned this to my doctor and he said that I can eat anything I want in moderation, which is a total contradiction to what I have read. When asked, he also said I don’t need a dietician. I believe that I do. What you you think doctor? Thank you for any information you could give me.

People with early Polycystic Kidney Disease (PCKD) should follow a low salt diet and maintain a healthy body weight.  This can be done by combining exercise with the appropriate amount of calories to maintain a healthy lifestyle.  I am a … Continue reading

Posted in Ask the Doctor, Blood/Urine Testing For Kidney Disease, Chronic Kidney Disease, Diet/Nutrition, Kidney-Related Health Questions, Laboratory Testing, Polycystic Kidney Disease, Treatments

How common is complete energy depletion in patients on dialysis? My fiance had both Polycystic kidneys removed Jan 2017. He’s been on dialysis 5 years. About 2 years ago, he started suffering from devastating energy loss. He was very active prior to kidney failure, and even for first two years. We remodeled a house and he was up and working every day. In Jan 2014, he was diagnosed with Bilateral Vestibulopathy, from an allergic reaction to Gentimycin. Since then, his equilibrium is very poor. He stumbles frequently; to the point that many people think he is drunk. His nephrologist has him on prednisone right now, which just makes him sweaty. His energy level is still low. He stays in bed until about 11 -12. He gets up, takes shower, then has to take a nap. He has lunch, then sits in couch, with computer. We cook dinner around 8pm at night. He has to sit to chop things. His only activities are literally showering, going online, food prep, and if he’s lucky, he can go grocery shopping – as long as he can use a cart to keep himself upright. (He won’t use carts for handicapped). He’s 52. I am starting to think that he may be in a depression, in addition to his medical issues. We have no physical activity between us, either. It’s very sad for me to watch him disappear.

I agree with you that this is very unusual.  I would suggest that your fiancé have further evaluation and testing.  Depression is very common in dialysis patients and in patients with chronic medical illness.  Your fiancé should ask his nephrologist … Continue reading

Posted in Ask the Doctor, Kidney Failure, Kidney-Related Health Questions, Laboratory Testing, Medication and Kidney Disease, Medication and Kidney Function, Polycystic Kidney Disease, Sexual health, Symptoms and Side Effects, Treatments